Commenting on today’s first national audit of epilepsy care for children and young people, The Royal College of Nursing expressed ‘profound concern’ that fewer than half of children with epilepsy had access to a specialist nurse.
RCN chief executive and general secretary, Dr Peter Carter, said: “Epilepsy is clearly being treated very well in many parts of the country, and specialist nurses have led the way in helping children and their families to manage epilepsy. However, it is a matter of profound concern to us that this is not the case everywhere.
“The recommendation that all children have access to a specialist nurse is there for a reason – the nurse can offer an unparalleled combination of expert clinical advice alongside practical help for children and their families.
“Too often, without the right advice many children face needless complications which affect not just their health but their education and other activities. We would urge NHS organisations to give every child access to a specialist nurse to keep them as well as possible and to avoid unnecessary and expensive hospital admissions.”
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